Understanding Arthrogryposis and A New Normal, part two
Normal would always be a word I redefined with my life. There is nothing normal about looking like a pretzel when you’re born. But I did. My parents immediately knew something was off the night I was born. I was breach. I was blue and coded. I looked like the...
Understanding Arthrogryposis and A New Normal, part one
We went to physical therapy that day. And the therapist had been working on your balance and standing for a while. Probably months. We had been trying to get you to walk independently. All of a sudden you walked from the PT to me. It was about 4 steps. Unassisted. So...
Breaking Through Barriers: When Expectations Affect Hope
I had a favorite verse in high school. It was Proverbs 19:21 — “Many are the plans in the mind of a man, but it is the purpose of the Lord that will stand.” I knew what was going to happen next. I was going to college. Just like my brothers. Just...