You aren’t supposed to look like a pretzel when you are born. But I did… Because of my physical disability, independence is not an option. But I’ve accepted this fact for years. I don’t let limitations stop me from chasing any dream. Several...
I used to attend a camp for children with neuromuscular disease. I liked it some years. But I grew to not enjoy the camp sooner than most. There was no one reason I stopped going. It was a combination of the school calendar conflicting and my heart no longer...
It wasn’t the first time I had fallen. I was as used to falling as I could be. We practiced falling in physical therapy with the cushiony mats and I tried to tuck in my head or my arms to minimize injury. But one never really gets better at the suddenness of a...
This isn’t a story about what we did or where we went. This is a real-life story about friends — when they cared, how they helped in tangible ways, and what that meant. I went to a baseball game earlier in the month. If you don’t know me, you might...
Caregiving isn’t just about me asking someone to help me with a specific task and then we do it. That is part of it and that is how caregiving begins. But caregiving done well goes further. At the end of June, I wrote about the controversial book, Me Before You....