


3 Unspoken Goals of Caregiving
Caregiving isn’t just about me asking someone to help me with a specific task and then we do it. That is part of it and that is how caregiving begins. But caregiving done well goes further. At the end of June, I wrote about the controversial book, Me Before You....
Understanding Arthrogryposis and A New Normal, part three
My first day of school came sooner than what’s considered normal. I was only 2. My oldest brother headed to kindergarten and I headed to preschool. Different schools, but I love the fact that we started school the same year. One of the local schools offered a...
Understanding Arthrogryposis and A New Normal, part two
Normal would always be a word I redefined with my life. There is nothing normal about looking like a pretzel when you’re born. But I did. My parents immediately knew something was off the night I was born. I was breach. I was blue and coded. I looked like the...