I used to attend a camp for children with neuromuscular disease. I liked it some years. But I grew to not enjoy the camp sooner than most. There was no one reason I stopped going. It was a combination of the school calendar conflicting and my heart no longer...
I’ve already mentioned that my classmates loved to help me at school. I couldn’t tell you how it started or when, but I have memories of friends helping all the way back to kindergarten. Both of us saw the fun side most of the time. As friends were...
Surgery of any kind isn’t fun for anyone, especially a third grader. I thought I was going to a normal check-up with my orthopedist. I was never a fan of those appointments. Then he said, “It’s time for your back surgery. We can’t wait any...
It wasn’t the first time I had fallen. I was as used to falling as I could be. We practiced falling in physical therapy with the cushiony mats and I tried to tuck in my head or my arms to minimize injury. But one never really gets better at the suddenness of a...
If you asked me, “What’s it like to be different?” or “When did you know you were different?”…I might respond in one of three ways: “I’m not different. I’ve never seen myself as different.” (I shared more on...
When I first bought the Me Before You book, I didn’t know it came with controversy. I didn’t realize I was entering a story full of dilemma and debate centered around an unnamed question: Is life in a wheelchair worth living? The movie version of Me Before...