Understanding Arthrogryposis and A New Normal, part two
Normal would always be a word I redefined with my life. There is nothing normal about looking like a pretzel when you’re born. But I did. My parents immediately knew something was off the night I was born. I was breach. I was blue and coded. I looked like the...
Understanding Arthrogryposis and A New Normal, part one
We went to physical therapy that day. And the therapist had been working on your balance and standing for a while. Probably months. We had been trying to get you to walk independently. All of a sudden you walked from the PT to me. It was about 4 steps. Unassisted. So...
The Real Rest We Need
I thought I would take a break from writing today. Just rest. Not quit or really pause the blogging, but give myself a day off. I have had a lot on my mind as I’m pondering ideas for the blog’s future, looking at the piles I’ve left on my desk for too many...