Understanding Arthrogryposis and A New Normal, part one
We went to physical therapy that day. And the therapist had been working on your balance and standing for a while. Probably months. We had been trying to get you to walk independently. All of a sudden you walked from the PT to me. It was about 4 steps. Unassisted. So...
The Me Before You Dilemma: What Makes Life Worth Living
When I first bought the Me Before You book, I didn’t know it came with controversy. I didn’t realize I was entering a story full of dilemma and debate centered around an unnamed question: Is life in a wheelchair worth living? The movie version of Me Before...
Breaking Through Barriers: When Expectations Affect Hope
I had a favorite verse in high school. It was Proverbs 19:21 — “Many are the plans in the mind of a man, but it is the purpose of the Lord that will stand.” I knew what was going to happen next. I was going to college. Just like my brothers. Just...
Breaking Through Barriers: When Expectations Affect Daily Life
“Can you hold onto both arms?” “I got you.” “Ok, I am trying to get there. I just can’t move as fast.” “It’s okay.” “I don’t like feeling different.” I had this conversation with my mom...