


Understanding Arthrogryposis and A New Normal, part one
We went to physical therapy that day. And the therapist had been working on your balance and standing for a while. Probably months. We had been trying to get you to walk independently. All of a sudden you walked from the PT to me. It was about 4 steps. Unassisted. So...
The Real Rest We Need
I thought I would take a break from writing today. Just rest. Not quit or really pause the blogging, but give myself a day off. I have had a lot on my mind as I’m pondering ideas for the blog’s future, looking at the piles I’ve left on my desk for too many...
Two Reasons to Lose Track of Time
I lose track of time when I’m writing. It can take a while for me to get started, but once I’m there, once I’m in the zone, I can’t really stop until that task that day feels “done.” I will barely eat lunch or delay dinner. I will...